We’re excited to invite you to EBRP's March town hall! This will be a public discussion with Jordan Eaves, EB Mom and Founder of Wesson's Wish, Dr. Diana Reusch, Assistant Professor of Dermatology at UMass Chan Medical School, and Michael Hund, CEO of EBRP.
When her son Wesson completed his battle with EB on September 5th, 2021, Jordan Eaves turned heartbreak into hope by founding Wesson’s Wish. In raising EB awareness, funding vital research, and supporting families affected by EB, this incredible organization is a love letter to Wesson and his legacy in action. Jordan will be joining us to share her family's story and to discuss the creative initiatives and events they've started to support their mission and bring us closer to a cure.
Dr. Diana Reusch is a leading researcher in the EB space who will be discussing her team's work with Ataluren, an oral medication that promotes the readthrough of premature termination codons (PTCs), as a treatment for Junctional EB.
Dr. Mei Chen and Dr. David Woodley are a dynamic duo who have been pioneers at the University of Southern California for over 20 years. They'll be discussing their life-saving work with Gentamicin and the current research being done to make it safer and more effective.
Please submit your interest and questions for our speakers in advance of the Town Hall by entering them below. We hope to see you there!
